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(2) stories found containing 'lissencephaly'


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  • Kurpgeweit family 'learning as we go' after son's diagnosis with rare brain condition

    LuAnn Schindler, Publisher|Jan 25, 2024

    As a licensed practical nurse, Alyx Kurpgeweit recognizes when a patient is in distress. As a mother, Kurpgeweit realized her son, Rhett, who was six months old at the time, was struggling. "He wasn't sitting up yet and wasn't meeting normal milestones," she said. A discussion with the family's pediatrician led Alyx, husband Matt and Rhett to Boys Town National Research Hospital, in Omaha, where Rhett was diagnosed with lissencephaly, more commonly known as Smooth Brain Syndrome. Ironically,...

  • Fire departments plan benefit for Rhett Kurpgeweit

    LuAnn Schindler, Publisher|Jan 18, 2024

    Two area fire and rescue departments will give an area couple and their 16-month-old son assistance with ongoing medical bills during an upcoming fundraiser. Members of the Ewing and Bartlett fire departments will host a benefit for Rhett Kurpgeweit, his parents Matt and Alyx and sister, Wesley, Saturday, Jan. 20, at the Wheeler County Fairgrounds in Bartlett. The event will begin at 5 p.m. A freewill offering will be accepted for the meal. Silent auction items and a gun raffle are also...